84: I have searched your archives but couldn't fine an answer
to my specific question. My grandson has very negative reactions to
positive reinforcement. Tell him he's done a good job and he gets
all bent out of shape. My daughter, who attended your presentation
in Kentville, Nova Scotia mentioned this was because it increased
his internal pressure by making him believe he now has to live up
to that standard he's just set. I can appreciate that and don't want
to cause him any more pain. Would it be reasonable to encourage him
by making it incident specific? IE..you handled that one really well,
for example and let it go at that? Are there other strategies for
providing encouragement and positive feedback that would not be as
threatening to him? He is 8. By the way, my family came home saying
your presentation was great and they will be going to every one within
reach. They will be bringing family members and friends to the one
you are having in Halifax in October. I believe you are doing a lot
of good for a lot of people and I thank you for it. P.D., NS, Canada.
am a 14 year-old boy who lives in north west New Jersey. Ever since
I was 7 I've had mild tics. They annoyed me but nothing more. But the
last month or so the tics have become increasingly worse. Everybody
notices....The thing is, I don't have T.S. I have been tested at least
5 times and all came out negative. I am a freshman in a public high
school and am in 4 out of 4 advanced placement classes. My question
is, if I don't have TS, what do I have, what's wrong with me, and how
can I stop. M.S.S., NY, USA.
77: I have two girls with TS. Both lately have increase their
vocabulary with swearing quite frequently. I tell them to stop or find
another word but this does not happen. How can they control their rage
attacks as well as the swearing. I e-mail your site to various friends
or people who are uneducated hoping to enlighten them. Other wise if
they chose not to associate with us it's their loss. J.D., USA.
74: I was....wondering something about coprolalia. I understand
there is an average age where children develop coprolalia - somewhere
around 12-14, is that correct? Do children who develop this learn the
swear words from what they hear or is it a natural vocal tic that causes
them to swear. I guess what I'm wondering is if children who have tourettes
hear swearing and develop coprolalia are they more likely to swear?
Should a person be cautious about swearing around someone with TS? JS,
71: I have read Dr. Schwartz books, "The Mind and the
Brain" and "Brain Lock". So far, he is the only reference
I've read that says that his....method can actually affect the brain
physically, and reduce significantly the symptoms of TS Tics. What is
your opinion of Dr. Schwartz's work? Do you know or think that his methods
work? I think the question comes down to this; How 'physical' is TS
as relates to the brain, and how much can the physical abnormalities
that define TS actually be changed by non-physical means....as opposed
to resorting to drugs or surgery? DHK, FA, USA.
64: This is my first time writing to you. I was diagnosed with
Tourette's when I was seven years old. It used to be real bad. I am
now 12 and everything is under control. I'm taking nine mg of orap a
day. But the problem is that I get tired really easily. Do you have
any suggestions? My e-mail address is protege5rulz.............. (As
you can see, I'm in love with the Mazda Protege 5.) Thanks, N.W., ON,
50: I work with Developmentally Disabled Adults between the
ages of 18 and 29 as a facilitator assisting them in making the transition
from school to adult life. One of the individuals I serve is a young
woman age 21 who also has Downs Syndrome. Her tics are in the form of
spitting. Her cognitive level of understanding seems to be at about
a 5 year old level in most areas. She understands only concrete simply
concepts. Those of us who spend time with her are noticing the spitting
increases when she is out in public or in situations which are new to
her [and] I am not sure if she is capable of understanding what is happening
when she is spitting. Right now she is getting all kinds of negative
messages from the world at large and I am seeing her self esteem being
eroded and her family also feeling discouraged. Do you have any suggestions
of how I/we might help her? Blessings, B.H., ON, Canada.
33: I am doing a research paper/project on the suppression
of tics through behaviour therapy. I am having a hard time finding resources
in this area. Would you be able to point me in some direction? Thanks,
C.D. (aspiring Child and Youth Worker), ON, Canada.
30: It is not uncommon for TS children (even adults) to be
sexually inappropriate, perhaps intrusive and not complying with the
cultural/societal norms. How does one address this in an in-service
since the question has popped up? More importantly, how does one handle
this behaviour to extinguish it? With some young children it seems to
extinguish fairly quickly with talking and substitution training for
in public. For others whom are at the age when this can be viewed as
deviant, criminal behaviour--Young Offenders 12+ and age of sexual consent
14 years--what suggestions for working with these young people. Some
of them are hypersexual....so some management issues need to be addressed.
K.T., BC, Canada.
18: Both my son J. and I suffer from insomnia--I'm probably
worse than him but he may get worse as he enters his teens. The only
thing I have found that helps is making sure I'm really calm (no stimulation)
before I go to sleep and I also take low dose (10-20 mg.) of Elavil
every evening. I recently started a new job and have found my insomnia
has intensified greatly. I just can't stop my mind from racing with
all the things I need to get done at work and elsewhere. I just tried
self-hypnosis with no success. Do you have any jewels of wisdom in regards
to insomnia. K.M., ON, Canada.
14: What do you know about the Asthsma/coughing tic? [My son]
has had a horrible cough for the last week, was dx with asthsma long
before TS but am hearing things about it as a tic now. Matt has no weezing
currently (at the moment) but is constantly coughing and the inhaler
doesnt work. I know you're busy so I'll understand if you can't respond
and won't be upset. R.S., MO, USA
11: Thank-you Duncan for your response to my question concerning
our son's sleep disorder. You mentioned quite a few useful things. I
had wondered about behavior modification for TS. But the pediatric neurologist
that Chase our son sees says that there really is no way to turn the
motor off in Chase's brain so easily. I had mentioned to the doctor
the idea of getting an aquarium for our son's bedroom in hopes to help
relax him at bedtime. He said that we could try but not to hang our
hopes on it.
the sleep clinics familiar with treating a sleep disorder associated
with TS? [Our neurologist] has had to remind me of the physialogical
nature of this disorder on more than one occassion. Reminding me of
an actual problem with neurotransmitters and the tics not being emotionally
induced.....[Our neurologist] is also very conservative with the meds.
He doesn't want Chase treated for his tics unless he is hurting himself
or unable to be productive. And none of those have occurred so presently
he only takes something for bedtime. We too would like to keep him on
little meds as possible or none at all.
Bless you and the ministry that you offer to us folks. You have a gift.
Don't give it up. Sincerely, S.H., Texas, USA.
10: Hi. [Our daughter] has been diagnosed with agoraphobia
and we are looking for some direction. Her family Dr. is a pill pusher
but admits meds would conflict with epileptic meds. I wonder if some
type of counselling is successful for this. What would an almost Dr.
suggest would be the most effective course of action. She is working
with a neurologist for her epilepsy. Jrvb, Ontario, CA.