Tourette Syndrome Life's a Twitch Logo


The Haven - Telling Others About Your Difference

Life's A Twitch! ®


Home

Nix Your Tics

Documentary

Writings

Youth Haven

Ask Dr. Dunc

Accolades

Presentations

Resources

Links

Disclaimer

Contact


If you are a new visitor, diagnosed with a difference, please read this introduction letter to you.

For all other new visitors, Dr. McKinlay also has a special introduction letter to you.


Nix Your Tics! Front Cover image

Nix Your Tics!

The Second
(E-)dition from "Life's A Twitch! Publishing". Click here to learn more.


To watch the Life's A Twitch! documentary via streaming video, click here.


If you would like to reprint writings from this site, please click here.


Before Signing the Guestbook

Guest Book Icon


Nix Your Tics Facebook Group Nix Your Tics Twitter Feed


Return to the beginning of "Telling People About Your Difference" here


Letters from kids without differences here


Letters from kids with differences here


Actual presentations, poems, and essays kids have done about their differences here


Print "The Big Secret" Parts I & II for school staff here


Life's A Twitch! Celebrating 15 years.
1998 - 2018
Life's A Twitch! Celebrating 15 years.

 

Jake

This essay was written by the brother of an 11 year old boy with TS named Karsten.

Both Jake and his mom are happy to share this essay with all of you -- thank you guys!! ENJOY..............


Twitch and Shout

Tourette Syndrome, what is it? Tourette Syndrome is a condition, which causes your body to have uncontrollable twitches or movements and to make verbal noises or repetitive words. I believe that people need to learn about Tourette Syndrome because my younger brother suffers with this debilitating condition. It used to be thought that children whom had Tourette Syndrome where unruly and slow learners. However, medical science has only recently begun to study this condition and is finally able to recognize Tourette Syndrome as a serious malfunction within the brain. Tourette Syndrome's causes, symptoms and treatment need to be researched further not only to help my brother, but to help anyone who is affected or living with Tourette Syndrome.

The study of Tourette Syndrome is still in its early stages within the medical community, although people have been living with it for hundreds of years. Medical science believes that Tourette Syndrome may be a lack of the body's natural ability to produce enough of the chemical known as dopamine within the brain. Dopamine helps your brain to function normally with a persons fine motor skills as well as proper nerve function. Thereby, if the brain is lacking dopamine, the body will react by not working as it should. It is also believed that Tourette Syndrome is a hereditary condition that is usually prominent in the 'y' chromosome or males; although females can also inherit the gene, which causes Tourette Syndrome. Some people who lack dopamine may also suffer with related conditions such as bi-polar disorder, hyperactivity, and attention deficit, Obsessive Compulsive Disorder or Anxiety. All of these medical conditions have similar symptoms and causes, but vary with severity and variety.

Living with someone who has Tourette Syndrome can often times be difficult. Not only is it hard to watch someone you care about shouting uncontrollable sounds such as 'oh', 'um', 'ah', or say phrases such as "excuse me, excuse me", over and over all day, it's hard on a family emotionally because you feel really bad for the person with Tourette Syndrome. People with Tourette Syndrome will often make various different body movements. Some on them may include things such as swaying an arm in the air, kicking a leg out, twisting ones wrists, hands, ankles or bending your body in different shapes or positions. Also, Tourette Syndrome patients also may make various different facial movements and have a tendency to fling their arms or legs out and slap or hit themselves. In addition to the verbal outbursts and physical movements, Tourette Syndrome sufferers tend to struggle in school. Symptoms of Tourette Syndrome usually surface by the time a person is in their second or third year of schooling, which is when they tend to start falling behind with their studies. Oftentimes, these children start to cover up their symptoms by portraying themselves as the class clown or they may act up by misbehaving. There are some people with Tourette Syndrome that have the tendency to count nonstop within their minds. Tourette Syndrome is such a complex condition that early diagnosis and treatment is imperative so that the patient can get a head start on learning to live with Tourette Syndrome and to function within a school and society to the best of their ability.

Seeing the many symptoms of Tourette Syndrome can be alarming to direct family members when you seemingly had a healthy child. In some children the process of learning may come to an abrupt halt as the condition progresses. This is generally when teachers and parents get together to discuss the situation and realize that something is wrong. Initially a trip to the family doctor will follow with a referral to a neurologist for further investigation. In most cases a firm diagnosis can take up to two years during which time the patient will have undergone several tests by a neurologist. Early on, a neurologist may dismiss Tourette Syndrome as a nervous tic disorder, however, as the condition persists and worsens Tourette Syndrome is certain to surface. Some doctors may send a video camera to the home so that the subject can be watched for a long period of time just to be certain of symptoms. Although there are a few drugs that are used to help control twitches, there is no cure. A common drug used initially is an anti-psychotic such as Ritalin or Orap, but they offer little relief. It is also important for Tourette Syndrome patients to seek the help of a psychologist to assist with learning techniques and relaxation exercises. In my brother's case, he has to see a physiotherapist as well. In severe cases the muscles may become rigid so it is very important that the muscles be stretched and exercised properly. However, with proper medical healthcare and a support team, people with Tourette Syndrome are capable of a long and rewarding life.

In conclusion, advise for anyone that me be dealing with Tourette Syndrome - education is the key. The importance for medical science to further research the causes, symptoms and treatment of Tourette Syndrome cannot be stressed enough. It is also important that educators learn about this condition in order for early diagnosis and help. Although at first a diagnosis of Tourette Syndrome may be alarming and disappointing, it is worth noting that Calgary employs one of the greatest neurologists that himself has Tourette Syndrome. Thereby, proving that no matter what an early Tourette Syndrome patient may feel or experience, children with Tourette Syndrome can be educated and are smart and articulate people who just want to be accepted by society along with their twitches and noises.

Top of Page


Home

Nix Your Tics!

Documentary

Writings

Youth Haven Ask Dr. Dunc

Accolades

Presentations

Resources

Links

Disclaimer Contact

http://www.lifesatwitch.com/telling_jake.html
Last updated on March 25, 2022

© 1998 - 2020.  Life's A Twitch!® & design are registered trademarks of B. Duncan McKinlay, Ph.D., C.Psych. (Retired)

All activities related to Life's A Twitch!® are conducted by B. Duncan McKinlay, Ph.D., C.Psych. (Retired) in a private capacity and do not represent the Ministry of Children and Youth Services or the Government of Ontario.

Dr. B. Duncan McKinlay's Life's A Twitch!® Site on Tourette Syndrome & Associated Disorders

d